What we do

Doctors, patient organizations and scientists work together to develop and provide the best treatment for people with NMD and PNS diseases. We realize our common goal through collaboration – research support, training of researchers and health workers, setting standards of care, developing new treatment methods and facilitating clinical trials, and informing people with NMD and PNS diseases about the most advanced treatments.

Trainings for doctors

— Conferences
— Study seminars
— Experience sharing

Patients information

— New treatment methods
— Fundraising for treatment coverage
— Standards of care

Clinical trials

— Databases
— Clinical site